Me
Friday, October 15, 2010
Update 10/15/2010
"The doctors said I will have to have my tonsils taken out soon." Dylan went to the ENT a couple of days ago and got the news he will have to have his tonsils out. Hoping this will help. As soon as we have a confirmed date we will update with more info. Thanks again to everyone for your thoughts and prayers.
Thursday, October 7, 2010
testing ...
I am currently in the Atlanta Childrens Hospital undergoing some test... to see if I need the surgery for Chiari Malformation... I have to have an EEG test and sleep test done... last night I had the first sleep test and the doctor came in and gave us an update. No seizure activity so far but there was abnormal readings in the left side of the brain. This is were the seizure accure but they are not sure of what is triggering them. One more night of the VEEG. The results of the sleep study is not back yet.
All about me ...
My name is Dylan Fitch and I am a 4 year old boy with Chari Malformation... I am having lots of test ran to see if a serious surgery is needed to help me... I have seziures. I am the youngest of 5 kids... I have one brother and 3 sisters.
Alittle info on Chiari Malformation ...
What is Chiari Malformation?
Chiari malformations (CMs) are structural defects in the cerebellum, the part of the brain that controls balance. When the indented bony space at the lower rear of the skull is smaller than normal, the cerebellum and brainstem can be pushed downward. The resulting pressure on the cerebellum can block the flow of cerebrospinal fluid (the liquid that surrounds and protects the brain and spinal cord) and can cause a range of symptoms including dizziness, muscle weakness, numbness, vision problems, headache, and problems with balance and coordination. There are three primary types of CM. The most common is Type I, which may not cause symptoms and is often found by accident during an examination for another condition. Type II (also called Arnold-Chiari malformation) is usually accompanied by a myelomeningocele-a form of spina bifida that occurs when the spinal canal and backbone do not close before birth, causing the spinal cord to protrude through an opening in the back. This can cause partial or complete paralysis below the spinal opening. Type III is the most serious form of CM, and causes severe neurological defects. Other conditions sometimes associated with CM include hydrocephalus, syringomyelia, and spinal curvature.
Is there any treatment?
Medications may ease certain symptoms, such as pain. Surgery is the only treatment available to correct functional disturbances or halt the progression of damage to the central nervous system. More than one surgery may be needed to treat the condition.
What is the prognosis?
Many people with Type I CM are asymptomatic and do not know they have the condition. Many patients with the more severe types of CM and have surgery see a reduction in their symptoms and/or prolonged periods of relative stability, although paralysis is generally permanent.
Alittle info on Chiari Malformation ...
What is Chiari Malformation?
Chiari malformations (CMs) are structural defects in the cerebellum, the part of the brain that controls balance. When the indented bony space at the lower rear of the skull is smaller than normal, the cerebellum and brainstem can be pushed downward. The resulting pressure on the cerebellum can block the flow of cerebrospinal fluid (the liquid that surrounds and protects the brain and spinal cord) and can cause a range of symptoms including dizziness, muscle weakness, numbness, vision problems, headache, and problems with balance and coordination. There are three primary types of CM. The most common is Type I, which may not cause symptoms and is often found by accident during an examination for another condition. Type II (also called Arnold-Chiari malformation) is usually accompanied by a myelomeningocele-a form of spina bifida that occurs when the spinal canal and backbone do not close before birth, causing the spinal cord to protrude through an opening in the back. This can cause partial or complete paralysis below the spinal opening. Type III is the most serious form of CM, and causes severe neurological defects. Other conditions sometimes associated with CM include hydrocephalus, syringomyelia, and spinal curvature.
Is there any treatment?
Medications may ease certain symptoms, such as pain. Surgery is the only treatment available to correct functional disturbances or halt the progression of damage to the central nervous system. More than one surgery may be needed to treat the condition.
What is the prognosis?
Many people with Type I CM are asymptomatic and do not know they have the condition. Many patients with the more severe types of CM and have surgery see a reduction in their symptoms and/or prolonged periods of relative stability, although paralysis is generally permanent.
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